Reader’s Letter May is national ME Awareness month

“When my ME was at its worst, I couldn’t eat, I couldn’t move, I couldn’t go out. Even washing my hair was tiring.”

This is what one woman living with the chronic, disabling condition Myalgic Encephalomyelitis (ME) told us about her experience for May’s ME Awareness Month.

On top of symptoms including pain, cognitive difficulties and post-exertional malaise – the body’s inability to recover after expending even small amounts of energy – people with ME often face a lack of understanding about the condition from those around them.

How does it feel to live with this every day? You can find out at

Sonya Chowdhury

Chief Executive

Action for ME